Whether you or a loved one have been newly diagnosed, or you have been affected by one of these disorders your entire life, the organizations listed below can provide a wealth of additional educational and support resources.
Canadian Organization for Rare Disorders (CORD)
Akcea considers organizational funding requests to support educational and patient-centric programs and initiatives.
Hereditary transthyretin (hATTR) amyloidosis
Learn more about hATTR amyloidosis – a rare, genetic disease.
Familial chylomicronemia syndrome (FCS)
Learn more about FCS – a rare, metabolic disorder.